Musings update

Hello, we are still hoping to get back to Disney this year, but finding travel insurance is proving troublesome, mostly because the tumour is so unpredictable, what they don’t tell you is that with 6 weeks Radiotherapy everything is shifted over 3 weeks, you don’t start getting the side effects until week 3, hair loss, side effects continue another 3 weeks after treatment has finished, brain swelling, loss of use of left side again, not sure if we get to critical mass at 1 1/2 weeks or if I have to wait the full 3 weeks then back up other side. What they also don’t tell you is life isn’t like tv, i’m still waiting to do the fun stuff. You write a bucket list, which you can’t complete due to spending too much time at the hospital, which will only prolong your life maybe a couple of extra months if you are unlucky, you get shafted by scottish provident, because they can’t input dob correctly from proof of id. So called specialist travel insurance companies, won’t touch you if you want to go to USA, no we don’t want to go to Disney Land Paris, we want to go to our Disney World Florida, our happy place, so don’t even suggest it.

Chemo has messed with my bone marrow, so having regular blood tests 😦 and platelet transfusions 😦 😦 not sure how long bone marrow takes to recover, everyone is different. Waiting for Arnold marrow to kick in 🙂 My Dad’s family has a history of making too many platelets but not until into their 60s-70s so I have a little while to wait yet.

Hoping to get back to dressmaking soon, I have two tops cut out one of them is started, a forte top and another larger Plantain cut out but not started. When I got my overlocker, I thought, ‘why does it come with a pair of tweezers, who is going to want to use them to thread, just makes it more difficult’, turns out if you have a brain tumour and Shakey hands they help a lot. Though I wish I had spent a bit more money and got a self threading one, it seems every time at the moment when I want to use it I have to change the thread colour. Though I have made it slightly easier, the same as the sewing machine it has handy dandy diagrams inside, what it doesn’t tell you is which order to thread it in, so to get round that I have numbered up the thread spools.

I’m going to be 50 at the end of next month, so hoping side effects will be finished by then, including looking about 6 months pregnant. Steroids/chocolate. If I was going to have to grow ‘a life sucking parasite’, a baby would be preferable to a brain tumour, even at 50.

Sorry if some of my ramblings are repeated from other posts, fuzzy brain syndrome (side effect). Sorry for calling a baby a parasite, hope not to offend anyone.

More soon…

Posted on 28/01/2018, in Florida, Hospital, musings and tagged , , . Bookmark the permalink. Leave a comment.

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google+ photo

You are commenting using your Google+ account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

w

Connecting to %s

%d bloggers like this: